Trustee Elaine Miller
Elaine Miller has been employed by the UKTS and holds the post of National Coordinator.
She has been a member of the NHS Sickle Cell & Thalassaemia Screening Programme Advisory Group since 2002. She also sits on the NHS Newborn Outcomes Information Governance and Clinical Group, the committee of the UK Forum on Haemoglobin Disorders and the steering group of the paediatric and adult haemoglobinopathy services peer review process. Elaine is an associate member of the Sickle Cell and Thalassaemia Association of Nurses, Midwives and Allied Professionals and was a member of the writing group who produced all 3 editions of the Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK in 2005, 2008 and 2016.
Elaine has been a passionate supporter of NTS since being contacted by Wendy for advice many years ago when Wendy was still living in Nepal. Says Elaine “In the UK we expect children who are born with thalassaemia to live a normal lifespan with the appropriate care. We are deeply conscious however that affected children born in the developing world are not so fortunate. I am proud to be associated with Wendy Pinker, who has done so much to help the thalassaemia children of Nepal – children who have been abandoned to their fate by the authorities in their own country.”